Thursday, November 11, 2010

*there's the party


Pictures from the party!
 They are narrated with yet another poem,
but I promise its the last one for awhile.
 
  What unsuspecting miracle
Has passed through his first year?
 
Has circled round the smiling sun
To sit before us here?
What angel changeling changed our lives
Since he arrived from heaven,
 
Bringing home the ballyhoo
That rounds the gates of Eden?
What bright eternal soul have we
Since taken into time?
Have welcomed weeks and days
Still stunned by the sublime?
What love has love brought to this world?
What joy has pleasure wrought?
For this, our celebration, sings
Of far more than we sought.
Unknown

 




More party sights:




Tuesday, November 2, 2010

*Happy Birthday Will!

The happy boy at his party on Saturday!
 
In researching birthday traditions, I found some really great advice: before picking one be sure it is something that can easily be recreated if you are away from home or if someone isn't feeling well. I thought that was a good plan so I decided against big projects.

The Waldorf tradition of education is something I know very little about. I know that it has origins in Europe, I know that it is considered an alternative style of teaching, I know that it shares a name with a hotel and a fruit salad, and I know that if you do internet searches for ideas of birthday traditions you will find Waldorf mentioned over and over. I found things like birthday rings, crowns, and forts with canopies. The one I picked is not only the easiest, but I also think it's the sweetest.

The birthday story below was customized for Will and the plan is to read this to him every year. The tradition of hearing the same thing every year reminds me of the movie City Slickers. Billy Crystal's character Mitch wakes up on the morning of his birthday to a phone call from his mother who tells him about the day he was born...he remembers it word for word and silently recites it along with her. He also makes the comment, "Well, at least she said my birthday in years. Usually she uses months like I'm still an infant. 'How's Mitch?' 'Oh, good! He's 468 months today.'" Announcing his age in months all his life is an equally easy tradition and one that is likely to annoy Will at some point. Sounds good to me! :)


Will's Birth Day story

High in the heavens in a place that many angels call home, there once lived a little angel with a smiling face who liked to sing and laugh and dance and play. He was very happy there. One lovely day the clouds in heaven parted and this little angel saw the beautiful green earth below with all the people happily playing and working and he suddenly longed to go there and see what it was like. He saw all the colors of the earth, he saw butterflies visiting flowers, and birds flying in the air. They seemed to be beckoning him. He saw fish swimming in the sea and all the different plants that covered the earth. He saw children climbing trees, running and jumping in the meadows and walking through sand and leaves. It was all so beautiful.

So he said to his guardian angel, "Please, may I go there?" But his angel looked at him and said, "No, it is too soon. You must wait a while yet." So the little angel went and was happy and soon forgot about the earth. Then one day he saw a glimpse of the earth through the clouds again. He saw mothers and fathers doing their work. He saw bakers and engineers and writers and farmers. He saw parents loving their children. Then he saw a man and woman with love and longing in their hearts for a child and he asked his angel, "May I go to earth now? I think they should be my parents." The guardian angel said, "You must go through the land of dreams first."

The next night the little angel had a dream. He dreamed that he met the man and the woman and they stretched out their arms to him. In the dream the little angel asked if he could be their child and they said "Yes". The little angel told his guardian angel the dream and asked "May I go now?". The guardian angel said, "Yes, it is your time. You may go and share your joy and purpose with all the world".

With help from heaven, the little angel began the journey to earth. He needed to go around the clouds, through the sky, and over a rainbow bridge to meet his parents. But first he needed to visit the house of the sun, the moon, and the stars. In the house of the sun the angel received the gift of courage and it was placed under his heart. At the house of the moon he received the gift of wisdom and it was placed under each of the soles of his feet. Then he went to the house of the stars. There he received the gift of the twinkle in his eyes so that he would always reflect the humor in life.

Since he had the guidance of wisdom from heaven, the angel was able to make the journey to the rainbow bridge much more quickly and easily than expected. On a cool day in the fall, the man and woman learned that the angel was on his way to the earth. When the time was exactly right, the angel handed his wings to his guardian angel who said, "I will hold these for you until you come back". Just after saying goodbye, the little angel crossed the rainbow bridge and came to meet the man and woman he had seen from that cloud in heaven and in his dream. Now made parents by the arrival of the angel, the mother and father smiled brightly as they welcomed him with grateful hearts and gentle arms and said "His name shall be Will", for this was the name the guardian angel had whispered to them in their dreams. And so the little angel received his first gift on the earth, the gift of his name.

Everyone in Will's caring tribe laughed and cried with happiness when he arrived. Everyone was so excited and made plans for helping Will with his new life on earth, for there are many more gifts to receive and he would need help.

When Will's parents brought him to his new home on earth they helped him grow big and strong. His hands and feet started out no bigger than some of the leaves falling from the trees. He had hair on his head that changed and grew and made everyone marvel. He liked to laugh and play. This was the beginning of him sharing his joy and purpose with the earth.

As the months passed Will grew bigger and stronger. His cheeks grew round and his personality shone more and more each day. He loved his mother Jody and father Chris very much and this family was surrounded with the love of their tribe. Over the course of Will's first year, he met the other members of his earthly family. With each introduction, Will grew in the knowledge that he would be well taken care of on earth.

As the summer sun faded the air grew colder and the leaves fell from the trees again. It became time to celebrate the anniversary of the day that Will had crossed the rainbow bridge. Today his earthly tribe celebrates again, just like they did his first day on earth. In heaven one candle is being lit by a special gathering just for the occasion. In this gathering the following can be found: family members that have yet to cross the rainbow bridge, those that have already returned and retrieved their wings from their guardian angels and Will's guardian angel. Quietly they watch and listen from the clouds, while his earthly family sings a special song. For today, Will is one year old.

One!

Monday, November 1, 2010

*there's ONE more day


When I have said my evening prayer,
And my clothes are folded on the chair,
And mother switches off the light,
I'll still be 11 months old tonight.


But from the very break of day,
Before the children rise and play,
Before the darkness turns to gold,
Tomorrow, I'll be one year old.


One kiss when I wake,
One candle on my cake.


Anonymous

*Happy Halloween!

 






Wearing scrubs makes one hungry for socks.


Wednesday, October 27, 2010

*there's his first parade and tailgate party


Will attended his first Homecoming at MTSU last weekend!
Band of Blue

The Color Guard in front of the President's House.
One of the floats
 


Men painted blue.

More men painted blue.

The parade route.

Mommy and Will
Will's first actual football game will have to wait for the future, 
but he did get to enjoy a good tailgating experience with friends!

Playing in the Pack 'n Play


Our friend Ella models the evolution of the traditional Homecoming outfit.
The stadium and more parade entries.
 

Mommy, Daddy, and Will
Daddy, Uncle Matt, and Will


Fun pictures made with Lightning the mascot, as well as Katy, Karsyn, Bethany, and Ella at the Alumni House.

Tuesday, October 26, 2010

*there's the Uncles

Napping with Uncle Eric in January.



Cuddling with Uncle Matt in October.

Monday, October 18, 2010

*there's things we won't miss

I'm happy to update everyone by saying Will is feeling better now. He and I both were sick during the past week but it is so nice to see him happy and crawling around again. Not only is he back to himself, he is better than ever. Great mood, less spitting up, eating a little from a spoon, making more noises, getting closer to talking, and crawling, crawling, crawling!

As we approach Will's 1st birthday, I have been thinking about these things that we no longer worry about.

*Spells
*Turning blue
*Apnea monitor









*Wires keeping us from walking around while we hold him
*Trips to the ER
*The NG tube being in the wrong place and causing aspiration
*When will his OHS be scheduled
*Weaning off the ventilator
*Visiting the hospital (We did count the mileage on our taxes though.)
*Getting clean clothes to the hospital
*Washing our hands over and over with that abrasive hospital hand soap


It's so nice to have those things out of our way!

Things we hope to add to the list soon:
*Surgeries
*Medicines
*Feeding tube
*Feeding pump
*Pole that holds the feeding pump
(Stubbing your toe on it is really painful.)
*Continuous night feeds
*Phone calls with the nutritionist about feedings
*Thinking about tube feedings
*Anything related to anyone's feeding tube ever :)

Thursday, October 14, 2010

*there's a crawler!

Pictures captured on my phone on October 7th.

He moved from the toy pallet across the room going backwards.
 
Then he made a sharp turn, went under this chair, 
and backed himself behind this plant where he hit a dead end.
Then he looked up and grunted at me as if to say
"What do I do now?!?!".

He has since crawled forward too!

And here is sick Will with a flushed face 
cuddling in bed with me this week.
We are so glad he's starting to feel better!

Monday, October 11, 2010

*there's the approach of birthday ONE

Cradle Song  
  
What does little birdie say
In her nest at peep of day?
Let me fly, says little birdie,
Mother, let me fly away.
Birdie, rest a little longer,
Till thy little wings are stronger.
So she rests a little longer,
Then she flies away.

What does little baby say,
In her bed at peep of day?
Baby says, like little birdie,
Let me rise and fly away.
Baby, sleep a little longer,
Till thy little limbs are stronger.
If she sleeps a little longer,
Baby too shall fly away. 

Lord Alfred Tennyson



Baby, sleep a little longer