About Me

I started this blog when our only child Will was born at 29 weeks in November of 2009, weighing 2 lbs and measuring 14.5 inches. He spent his first 4 months of life in the NICU and was diagnosed with congenital heart defect Tetralogy of Fallot at 22 days old. His open heart surgery at 5 months old was a success. Due to an oral aversion Will came home from the NICU with an NG tube and eventually got a G tube for feeding until he is able to eat by mouth with the help of feeding therapy. Will still sees a few specialists including a Gastroenterologist, Urologist, Nutritionist, and of course his regular Pediatrician. Will temporarily received physical therapy but was discharged when he was 17 months old. He also participated in feeding therapy for several months but has been discharged from that due to his great progress with eating. His vision is no longer monitored regularly but he does need hearing screenings due to the risk factors he experienced in the NICU. Despite all of the obstacles, Will is doing really well and it is so much fun to watch him grow!

As Will gets older he needs less and less contact with doctors but this blog is still a place to keep track of his everyday life and for others to benefit from what we have learned as a family from these experiences. Please contact me by email with any questions you may have!