General Tube Information:
click on titles to reach the links
Complete Tubefeeding - everything you need to know about tubefeeding, tube nutrition, and blended diets
Nathan's Chart - A daily menu planner for tube feeding.
Oley Foundation - Tips for living better on home IV and tube feedings for adults and children
G-Tube Replacement Emergency Travel Kit - from Heart Baby Home
Tube Feeding Emergency Kit - tips from Complex Child magazine
Tips for taking a G tube to school - from the Adapting Creatively blog
Yahoo Gastrostomy-Jejunostomy Feeding Tube - support group
Babies and Children with a Feeding Tube - Babycenter parent support group
Pedaling Backwards - A parent blog with information on everything from g tube site care and maintenance to troubleshooting clogs to government resources for special needs kids to blended diet recipes.
Products:
G Tube Pads - comprehensive list of vendors for G/GJ tube pads
Retrofied- According to this parent, this company has experience converting stylish handmade backpacks for kids to use for their continuous enteral feeding pumps.
Bundie Baby - special clothing for tube fed babies as well as the "Bundie Bunny"
My Tubey: A Day in the Life of a Tube Fed Boy (and Girl)- Children's book about tube feeding.
Nap Nanny - relieves acid reflux symptoms for infants while sleeping (only recommended for small infants; older models have been recalled)
Comfy Lifty Bed - relieves acid reflux symptoms for children while sleeping
DIY:
Children's Clothing Patterns
- The Adapting Creatively blog shares photos of children's clothing
that has been modified for G tubes and links to patterns. See also their
Sewing Clothes for G tube access tutorial. Tube Fed doll - how to modify a doll with a tube
Feeding Therapy Information:
Mealtime Notions
- site of Marsha Dunn Klein, a respected Pediatric Occupational
Therapist who specializes in the assessment and treating of feeding
issues. She is an author and educator for feeding therapists as well.
Her site has several informational essays and suggested products for
feeding therapy.
Her cute essay: Everything is a Grasshopper
I also recommend the article: Tube Feeding Plateaus
New Visions - informational articles on issues surrounding tube feedings including how to choose feeding programs by Suzanne Evans MorrisPicky Tots - ideas for introducing foods and several other sites with resources are listed in the column on the right
Popsicle Center - online information and support for families with feeding difficulties
No Tube - Net coaching site for a hunger-based rapid tube weaning program based in Graz, Austria. Research has been published on their 20+ years of experiencing in successfully weaning over 1,000 tube dependent children.
Tube Fed Kids Deserve to Eat - online support for tube weaning, particularly those using the Graz model
The Crunchy and The Smooth - The personal experience of an at-home intensive hunger based wean. Links to similar blogs can be found on her site.
An Unexpected Path - The first of a series of articles by a mom describing an intensive therapy program's hunger based wean.
Blended Diet information
Homemade Blended Formula Handbook by Marsha Dunn Klein and Suzanne Evans Morris - A must for those considering or beginning a tube diet made of real food. You Start with a Tube - The blog of a tube fed adult who shares his experience with tube feeding with a blended diet. Really good information can be found on this page. And he suggests you start here if you are new to blended diets. The results of his incredible Blenderized Diet experience survey can be found here.
Allie's Abnormal Appetite - The success of a homemade blended tube diet for a child with undiagnosed feeding difficulties. Included are recipes, videos, and links to similar blogs.
Different Paths - A tube feeding mom's blog with details about creating and administering a blended diet as well as product reviews.
Ainsley Rae - A tube feeding mom's blog about the success of a homemade blended tube diet for her daughter including how-to videos.
PsychMama - A tube feeding mom's blended diet recipe for her daughter and other tube feeding resources.
Lucy's Real Food -Recipes for homemade liquid nutrition for feeding tubes.
BlenderizedDiet.Net - Includes a forum, recipes, and resources
Yahoo Blenderized Diet - support group
Oley Foundation - their page on Blended Diet
Pureed By Gastrostomy Tube Diet - Published research on the success of real food through the tube to decrease vomiting after a Nissen fundoplication
Facebook Pages
copy and paste addresses
copy and paste addresses
Feeding Tube Awareness - https://www.facebook.com/pages/Feeding-Tube-Awareness/171684552853896
Feeding Essentials - https://www.facebook.com/pages/Feeding-Essentials/123411374383341
Blenderized Food for Tubies - https://www.facebook.com/pages/Blenderized-Food-For-Tubies/195156907193185
Blenderized Food for Tubies - https://www.facebook.com/pages/Blenderized-Food-For-Tubies/195156907193185
Fun With Food - Pediatric Feeding Support - https://www.facebook.com/pages/Fun-With-Food-Pediatric-Feeding-Support/195183930494156
Food Chaining - https://www.facebook.com/pages/Food-Chaining/127078483991561
My Button Buddies - https://www.facebook.com/pages/MyButtonBuddies/152726348478
Resources for Families Who Have Children with Special Needs - https://www.facebook.com/pages/Resources-for-Families-Who-Have-Children-with-Special-Needs/171806659522397
Private groups
Pediatric feeding disorders/FTT/GERD/and kiddos with feeding tubes - https://www.facebook.com/home.php?sk=group_128201623916975
The reflux room - https://www.facebook.com/home.php?sk=group_119068544839893
Chicago Area and suburbs Feeding Tube Support for Moms - https://www.facebook.com/home.php?sk=group_1684127
96549188The reflux room - https://www.facebook.com/home.php?sk=group_119068544839893
Chicago Area and suburbs Feeding Tube Support for Moms - https://www.facebook.com/home.php?sk=group_1684127
Pediatric Feeding Disorders Network - "Full With Grace" - https://www.facebook.com/group.php?gid=71996502296
