*there's another month of healing

Boo-boos everywhere!

Including another mosquito bite on his cheek:

His new G tube is on the right. It's also sometimes referred to as a Mic-key button. We hook a connector tube to it and then the feeding bags that we've always used attach to the connector tube.

Right now Will has 4 daytime feedings that drip in over the course of a half hour. At night he gets what they call a continuous feed. 30 mls per hour drips in over a span of several hours. That is very slow and keeps him from having large amounts of food in his tummy at any one time. We are in the process of weaning him off of the night feed and back to getting the bulk of his nutrition during the day. Which makes sense because that is when people eat! We hope he can tolerate the change and not spit up too much. 

Thankfully we've had a few home health nurse visits since getting the G tube. We learned how another family created a refrigerating system for the feeding bag with an insulated lunch box. We have LOVED this idea! I had been setting an alarm to get up and put more milk in the bag halfway through the night. Now we can fill the bag entirely and sleep all night like he does! 

 

This is a picture of the projector pictures on the ceiling in his room that we put on while he's falling asleep.

And here is our newest prized possession:

A portrait of Katie by family friend Debbie Patrick. 

It's perfect!

In regular baby news...I think Will is having a growth spurt and is in the very early stages of teething. No drool or sign of a tooth. But his hands are in his mouth constantly, he's grumpy and he is sleeping more than usual. Last night he slept for 11 and a half hours! And had his usual naps in the daytime. One day recently his nap was 2 hours long which is a pretty long nap for Will. As for the teeth, he makes us laugh when he tries to rub his own gums. Rather than moving his arm back and forth he will make a fist and leave it in front of his face. Then he shakes his head really fast! It's funny looking but we love it. 

I'm sure this isn't true, but this feels like the first regular baby news we've ever had about Will. It's completely unrelated to a surgery or a doctor or a problem. Will is fussy. And he's supposed to be! A sign of normal!!

 

Our FIRST family picture!!

This was after our little friend Karsyn's baptism last weekend. 

I have no idea why we waited to long to have a picture made together.

Thanks to Bethany for being our photographer!