*there's his first appointment

with the cardiologist! We had (well at least I had) been looking forward to it. First he was weighed, measured, had blood pressure taken and his oxygen saturation was checked. The topic of oxygen saturation is a blog post in itself, but today it started out at 78. 78?? That was odd. Good O2 sat is 100. In the 90s is also acceptable. My understanding is that everyone will have drops in sats at different times of the day and that is normal. The doctors are okay with it when Will's sats are in the 80s, which happens at times. If you've ever had one of those clamps on your finger with the red light on it, that was a pulse oximeter measuring your O2 sat. [for the record, we are almost as tired of the word 'sats' as we are the word 'spells'] For babies the pulse oximeter is a small light attached to something that resembles a little Ace bandage that usually gets wrapped around the foot. When Will is in the hospital it is monitored constantly and shows up as one of the numbers on the monitor that you've seen pictures of in the past.

When the doctor came in the room he checked the O2 sat again and it got as high as 90. Now that made more sense. We didn't get a date scheduled for surgery yet. This will depend on what his O2 sat is at the next appointment, and possibly the next one. If we see a trend of it being in the 70s then it will tell us that Will needs surgery a little sooner. If it stays high then we can wait longer - enough for him to gain 2, 3, maybe 4 more pounds. Weight today was 9 lbs, 2 oz. They say the heart is about the size of the person's fist. I'll have to get a picture of Will's fist at some point. As much as I want the surgery over with, if I were a surgeon I would want someone to do me the favor of letting the heart needing surgery to grow until it's as large as possible!

These 2 pics were taken with my phone. The quality isn't good but the content is worth it.

 Sleeping and....

Surfing?

 

Smiling!

Coming soon....a curl is born.